San Francisco Employment Privacy Law Lawyer & Attorney : Littler Mendelson Law Firm : Employment Related Privacy Issues

On April 25, 2008, the House passed H.R. 493, The Genetic Information Nondiscrimination Act of 2008 (GINA), a bill that President Bush is expected to sign barring private employers from engaging in genetic discrimination. On first read, I have spotted at least one potential trap for unsuspecting employers if the bill is enacted as drafted.

Section 206(b) of the Act permits disclosure of "genetic information" in only very limited circumstances, which do not include responding to a subpoena or a civil discovery request. Employment litigators, particularly on the defense side, commonly subpoena personnel files, including all medical information from a plaintiff's former employers -- for example, to test a plaintiff's allegation that the defendant/current employer's alleged actions caused emotional distress. Under the bill, as written, an employer who inadvertently produces "genetic information" in response to such a subpoena would violate the Act because the statute does not require a knowing disclosure to support a claim.

The possibility of an inadvertent disclosure of "genetic information" is not hypothetical. As defined in the House bill, that term encompasses "the manifestation of a disease or disorder in family members" of an employee, which could include, for example, an FMLA certification stating that an employee needs FMLA leave because a spouse or child has sickle-cell anemia or Tay-Sachs disease.

If the bill is enacted as written, employers should strongly consider screening all medical information upon receipt to determine whether that information might fall within the broad definition of "genetic information." If so, the information should be filed separately from all other medical information with a note that the information should not be produced except in response to a court order.

For a more detailed discussion of this Act, please see Littler ASAP: Genetic Antidiscrimination Law Creates New Compliance Challenges for Employers by Philip L. Gordon and Jennifer L. Mora.

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The recent death of Major League Baseball pitcher Joe Kennedy is a tragic reminder that employees die.  However, in many ways, the employment relationship lives on, albeit under different terms.  Estates may need to be administered.  Law enforcement may need to investigate the cause of death.  Children may need to know if their deceased parent was diagnosed with a genetically transmitted disease.  How are employers supposed to respond to these requests?  More pointedly, do deceased employees have any privacy rights in their health information?  The short answer is “yes”.

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Genetic tests are available today for more than 1000 diseases and counting. Individuals can use genetic testing to better identify and manage their risk of developing specific medical conditions before those conditions manifest themselves. For better or worse, such information may also have value to employers desiring to know whether an employee (or candidate) may be genetically inclined to ailments like carpel-tunnel syndrome or long-term illness from exposure to workplace toxins. However, given the fact that 84% of Americans mistrust their employers when it comes to having access to their genetic information, the data are not easy to use. To be sure, the controversy over genetic screening in the workplace is palpable and raises questions such as: Can (or should) genetic information be used in making employment decisions? What qualifies as sensitive “genetic information”? With what level of care must an employer handle genetic information already in its possession? 

While state law may resolve one or more of these questions in nearly 40 states, no federal legislation exists on the topic. That is likely to change soon. In April, the House passed the Genetic Information Nondiscrimination Act (“GINA”) of 2007 (H.R. 493) by a vote of 420-3, and the Senate is nearly certain to follow suit on its companion legislation (S. 358). With President Bush having already endorsed GINA, the debate is turning to what day-to-day effects GINA would have on the workplace. As it stands, GINA would: (1) prohibit employers from purposely acquiring genetic information about employees; (2) prohibit employers from making employment decisions based on an employee’s genetic information or use of genetic testing services; and (3) compel employers to treat genetic information in their possession as “health information” under HIPAA and the rules governing “confidential medical records” under the ADA.                       

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